Twin Baby Girls Fight Over Pacifier Bot Numbers

by Jillian Johnson with commentary from Dr. Christie del Castillo-Hegyi

Landon would be five today if he were still alive. Information technology's a very hard birthday–five. It'southward a milestone birthday. Most kiddos would be starting kindergarten at this historic period. Merely non my trivial guy. I wanted to share for a long fourth dimension well-nigh what happened to Landon, but I always feared what others would say and how I'd be judged. But I desire people to know how much deeper the pain gets.

I share his story in hopes that no other family ever experiences the loss that we have.

Jarrod and I wanted what was all-time for Landon equally every parent does for their child. We took all of the classes. Bought and read all of the books. We were gear up! Or so we thought….every class and volume was geared toward breastfeeding and how information technology's then important if you desire a healthy child. Landon was born in a "Baby-Friendly" hospital. (What this means is everything is geared toward breastfeeding. Unless y'all'd had a breast augmentation or cancer or some serious medical reason as to why you couldn't breastfeed, your infant would not be given formula unless a prescription was written past the pediatrician.)

Sleeping comfortably a few hours after birth

Landon was built-in total-term weighing 3360 g or seven lbs. seven oz, born by urgent cesarean due to fetal intolerance to labor afterwards the water had broken. [Previous publication of this blog said he had an emergency c-section. He was delivered by depression transverse incision over 12-14 minutes, which is considered an urgent, not a STAT department.] Apgars were 8 and 9 and he was stabilized. He was transferred 2.v hours later to the Mother-Baby Unit and returned to his mother. He exclusively breastfed with excellent latch for 15 – 40 minutes every 1-2 hours.

Landon, is 12 hours former.

Landon was on my breast – ALL OF THE TIME . The lactation consultants would come in and see that "he had a slap-up latch and was doing fine" simply there was one who mentioned I  may have a problem producing milk . The reason she gave was that I was diagnosed with PCOS (polycystic ovarian syndrome) and it was just harder for women with hormone imbalances to produce milk. She recommended some herbs for me to accept when I got out of the infirmary.

While in the hospital, his mother'south risk factors for failed and delayed lactogenesis II (copious milk production) were identified by the IBCLC-lactation consultant. They were borderline diabetes, PCOS, issues with infertility, minor, widely spaced breasts with minimal growth during pregnancy, being a first-time mom, and emergency c-section. Despite that, she was encouraged to exclusively breastfeed. She was closely monitored past a nurse, lactation consultant, and physician support. Her baby'south latch was rated as fantabulous.

Landon cried. And cried. All of the time. He cried unless he was on the chest and I began to nurse him continuously. The nurses would come up in and swaddle him in warm blankets to aid get him to sleep. And when I asked them why he was e'er on my breast, I was told information technology was because he was "cluster feeding." I recalled learning all about that in the classes I had taken and being a commencement-fourth dimension mom, I trusted my doctors and nurses to aid me through this – even more so since I was pretty heavily medicated from my emergency c-department and this was my first baby. But I was incorrect. I've learned I have to be my child's number i advocate.

By the first 24 hours, he had nursed a total of 9.3 hours, had aught wet diapers and four dirty diapers. By 27 hours, he had lost iv.76%. His nursing sessions became longer and longer until he was on the chest continuously by the second day of life. On the second day, he produced 3 moisture diapers and half dozen dirty diapers and nursed for almost 14 hours full. Past 53 hours of life, he had lost 9.72%.

At this fourth dimension, the scientific literature on wet and dirty diaper product has shown that the number of diapers produced have no correlation with adequacy of milk intake in the first 4 days of life. The only study on diaper counts has shown that even newborns who lose excessive weight tin produce up to half-dozen wet and dirty diapers a mean solar day.  In addition, at this time, the Baby-Friendly Hospital Initiative has produced no data on the condom of newborn fasting and weight loss caused by sectional colostrum feeding and what caste of weight loss protects a child from encephalon-threatening complications like hyperbilirubinemia, hypernatremic dehydration, and hypoglycemia. So far, the scientific literature shows that babies who lose greater than 7% of their nascency weight are at the highest gamble of developing excessive jaundice and hypernatremia to levels that can cause long-term developmental disability. It has besides been found that 10% of salubrious, term, exclusively breastfed babies undergoing the Baby-Friendly protocol experience hypoglycemia to levels that are associated with 50% declines in the ability to laissez passer the literacy and math proficiency test at 10 years of age, even if aggressively corrected.

Constant, unsatisfied nursing and inconsolable crying are two of the signs of newborn starvation that lead to encephalon-threatening complications. If a child is receiving a fraction of their caloric requirement through early exclusive breastfeeding, they tin can feel severe hunger and thirst, which is why they will cry inconsolably and breastfeed continuously when it is the only source of calories and fluid they are offered. If a mother'south colostrum does not come across the child's caloric requirement, they volition breastfeed for hours a twenty-four hours in an attempt to save their hunger. A child who is "cluster-feeding" may actually burn more calories breastfeeding than they receive in return, which can result in fasting atmospheric condition and accelerated weight loss. The constant nursing and crying often plant in newborns by the 2d twenty-four hours of life take been called "The 2nd Night Syndrome" in the breastfeeding industry. This is also when mothers receive the most pressure level to avoid supplementation in society to increment rates of exclusive breastfeeding at discharge. Babies who reach critically low levels of reserve fuel and fluids earlier their mother's milk comes in can be constitute lethargic with compromised vital signs after hours of abiding nursing and fussing, at which time they are often diagnosed with hypoglycemia, excessive weight loss, and/or hyperbilirubinemia, all markers of starvation.

Did y'all know that newborns aren't supposed to cry all of the time? They're supposed to swallow and sleep and dingy their diapers. I had no thought that he was comfortless because he was starving – literally. And when a infant is just on the breast, how do nosotros gauge how much they're actually getting out? Sure, at that place should be wet and soiled diapers, and weight checks, right? And where is the limit every bit to weight loss and a minimum for the diapers inverse?

Being discharged with visible weight loss.

Landon was discharged at 64 hours (two.5 days) of life having lost ix.seven% of his nascency weight continuously and exclusively breastfeeding with a female parent whose milk had not come in. These are routine and unremarkable findings in newborn babies discharged home to exclusively breastfeed. At this time, at that place are no studies using standardized developmental testing or serum markers of starvation that prove that allowing babies to lose up to 10% of their birth weight protects them from brain- and life-threatening complications, despite wide-spread perception that it is normal for exclusively breastfed babies to lose. Therefore, Landon's mother was given no instruction to supplement. He was discharged with next-mean solar day follow-up.

So we took him home….not knowing that after less than 12 hours dwelling with us, he would take gone into cardiac arrest caused by dehydration, from unintended starvation because I was the mother who had no colostrum. for my babe. And the all-time communication I was given by ane of his NICU doctors while he was on life back up is sure breast is best, just follow with the bottle.

This manner you know your infant has eaten plenty….if only I could go back in time.

Landon continued to continuously breastfeed at habitation and was establish unresponsive, pulseless, and blue subsequently eventually falling asleep from cluster feeding. His parents chosen 911. Per EMS, he was asystolic (no eye rate) and he received CPR en route to the local ER. By the fourth dimension they arrived at the ER, he was institute to accept pulseless electrical activity (centre rate with no blood force per unit area). There, he was intubated and received several rounds of epinephrine. He was hypothermic with a temperature of 93.one F. Afterwards thirty minutes of CPR, no cardiac activity was found on ultrasound. With parental consent, CPR was stopped and he was left on the ventilator while continuing to receive Four saline. 20 minutes afterwards, with 4 fluids, he regained his pulse. He was transferred to a Level 3 NICU to get the head cooling protocol for babies that experience a brain injury. He was diagnosed with hypernatremic dehydration and cardiac arrest from hypovolemic shock.

Landon in the NICU on full life support.

I withal have many, many days of guilt and questions – what if I would've just given him a bottle? And anger because how would I have known. I trusted my wellness care professionals to protect my infant from harm. I recollect when Stella, my daughter was born, and she was ever tranquility. I kept asking the nurses what was wrong with her. They said zilch. She's doing what she'due south supposed to. Sleeping. Eating. And information technology was then that I realized that it wasn't normal for a newborn to cry as much every bit Landon did. He was merely crying out from his hunger.   Just I didn't know. I should've known.  I however struggle daily feeling as though I failed him.

Landon received a brain MRI in the hospital which confirmed brain injury consistent with hypoxic-ischemic encephalopathy or brain injury from oxygen deprivation due to low blood pressure level from dehydration and cardiac arrest. He was diagnosed with lengthened seizure activity on EEG, the upshot of severe, broad-spread encephalon injury. Given his poor prognosis, he was taken off life back up xv days later on. The dissection report deemed the causes of death were hypernatremic dehydration followed by cardiac arrest causing hypoxic-ischemic encephalopathy (diffuse encephalon injury).

Jill held Landon equally he took his terminal breaths.

That picayune boy gave me ten of the about incredible life-changing months. I've been humbled. Challenged. My relationships have fallen apart. Some have come up back together. I've learned forgiveness. And the truthful meaning of "life is curt." I love difficult – to a fault. But I couldn't live with myself knowing his expiry was in vain. I've learned and then many lessons. I've learned the true meaning of compassion and unconditional dear. Thank you for taking the time to read this. And now I invite yous to watch 200 cute moments in our ten months with Landon.

http://youtu.be/lp8PJ_P6eOk

Happy 5th Birthday my sweet boy. I dearest you to the moon and dorsum.

— Jillian Johnson

The Fed is All-time Foundation is dedicated to the prevention of newborn and infant starvation from insufficient sectional breastfeeding. We do so by studying breastfeeding stories sent past mothers and the scientific literature on breastfeeding complications that lead to infant brain injury and decease. Since the get-go of our entrada almost ii years ago, we have received tens of thousands of newborn and infant starvation stories leading to the complications of hyperbilirubinemia, dehydration, hypernatremia,  hypoglycemia, and failure to thrive. These complications occur considering the electric current breastfeeding guidelines have not been studied for safe, operates with lilliputian awareness of the caloric and fluid requirements of newborns nor the corporeality transferred to babies until complications have already occurred. "Just one bottle" can salvage a kid from these tragedies every bit it is ofttimes a female parent'southward first inkling that a child is, in fact, starving from exclusive breastfeeding.

If your baby is experiencing distress and signs and symptoms of starvation, nosotros encourage yous to advocate for your child. Nosotros encourage mothers to notify hospital administrators if they are being pressured to avoid supplementation to convalesce their child's hunger. You have the right to feed your child and your child has the right to exist fed. No one but your baby knows how close they are to empty. The only way they tin can communicate distress is by crying. Listen to your baby and listen to your instincts.

Our message is unproblematic. Feed your baby. Feed them as much as they demand to stay safe and satisfied.

How to supplement your baby until your milk comes in:

How To Fix For Supplementing When Breastfeeding Your Baby In The Hospital

Jillian Johnson: My Message To Parents During Globe Breastfeeding Week-Just One Canteen

The Loss Of Our Son Has Devastated Our Family – This Time I Will Be Supplementing With Formula After Every Nursing session

NIGERIAN Female parent SPEAKS OUT Well-nigh HER BABY'S DEATH AFTER Beingness TOLD TO KEEP EXCLUSIVELY BREASTFEEDING: WHAT SHE WANTS HUMAN RIGHTS ORGANIZATIONS TO KNOW

My Baby Suffered And Nearly Died–Why Are The Risks Of Exclusive Breastfeeding Not Taught To Mothers?

Merely One Bottle Would Have Prevented My Baby'due south Permanent Brain Damage from Hypoglycemia

Feeding Your Baby—When Supplementing Saves Breastfeeding and Saves Lives

U.S. Study Shows Baby-Friendly Infirmary Initiative Does Not Work

NICU Nurse Discloses Newborn Admission Rates From Breastfeeding Complications in BFHI Unit

Nurses Are Speaking Out Nigh The Dangers Of The Baby-Friendly Health Initiative

Neonatal Nurse Practitioner Speaks Out About The Dangerous And Deadly Practices Of The BFHI

The Loss Of Our Son Has Devastated Our Family unit – This Fourth dimension I Will Be Supplementing With Formula After Every Nursing session

Dr. Nicole Male monarch Warns About Dangers of Baby-Friendly Hospital Initiative at USDA Dietary Guidelines Meeting

Hospital Drops Baby-Friendly Program Afterward Doctor'due south Babe Was Harmed

WHO 2017 Revised Guidelines Provide No Prove to Justify Exclusive Breastfeeding Dominion While Evidence Supports Supplemented Breastfeeding

Letter of the alphabet to Doctors and Parents About the Dangers of Bereft Exclusive Breastfeeding

Ii Physicians Describe How Their Baby-Friendly Hospital Put Their Newborn in Danger

The '2nd Night Syndrome' is Abnormal and This is Why

Merely One Bottle Would Have Kept My Baby Off Life Support

Fed is Best Statement to the USDA Regarding the Harms of the Infant-Friendly Infirmary Initiative

Italian Dr. Talks Nearly Her Daughter Starving In A Baby-Friendly Infirmary And Clinic Under The Care Of IBCLCs

Nurses Quit Because Of Horrific Experiences Working In Babe-Friendly Hospitals

Nurses Are Speaking Out About The Dangers Of The Babe-Friendly Health Initiative

"Is Baby-Friendly Safe?": BFHI Safety Bug Discussed at National Neonatology Conference

Thank YOU FOR YOUR INTEREST IN THE FED IS All-time FOUNDATION!

Our mission statement is:

The Fed Is Best Foundation works to identify critical gaps in the current breastfeeding protocols, guidelines, and pedagogy programs and provides families and wellness professionals with the virtually up-to-date scientific research, education, and resources to exercise safe baby feeding, with breast milk, formula or a combination of both.

Above all, nosotros strive to eliminate babe feeding shaming and eliminate preventable hospitalizations for insufficient feeding complications while prioritizing perinatal mental health.

HOW YOU Can Back up FED IS BEST

In that location are many means you tin back up the mission of the Fed is Best Foundation. Please consider contributing in the following ways:

1. Join united states of america in whatever of the Fed is All-time volunteer and advocacy, groups. Click here to bring together our health care professionals group. We have: FIBF Advocacy Grouping, Research Grouping, Volunteer Group, Editing Group, Social Media Group, Legal Group, Marketing Group, Perinatal Mental Health Advancement Group, Private Infant Feeding Back up Group, Global Advocacy Grouping, and Fundraising Group.    Delight send an email to Jody@fedisbest.org  if you are interested in joining any of our volunteer groups.
2. If you need babe feeding back up, we have a individual support group–Join us hither.
3. If yous or your baby were harmed from complications of bereft breastfeeding delight send a message tocontact@fedisbest.org
4. Make adonation to the Fed is Best Foundation. We are using funds from donations to comprehend the cost of our website, our social media ads, our printing and mailing costs to attain health providers and hospitals. We do not have donations from breast- or formula-feeding companies and 100% of your donations become toward these operational costs. All the work of the Foundation is achieved via the pro bono and volunteer work of its supporters.
5. Sign our petition!Assist united states of america accomplish our policymakers, and drive change at a global level. Aid us stand up up for the lives of millions of infants who deserve a fighting chance.   Sign the Fed is Best Petition at Modify.org today, and share it with others.
6. Share the stories and the message of the Fed is Best Foundation through give-and-take-of-mouth, by posting on your social media page and past sending our Complimentary infant feeding educationalresources to expectant moms that you know. Share theFed is All-time campaign letterwith everyone you know.
7. Write a letter to your health providers and hospitals well-nigh the Fed is Best Foundation.Write to them about feeding complicationsyour kid may have experienced.
8. Print out our letter of the alphabet to obstetric providers and post them to your local obstetricians, midwives, family practitioners who provide obstetric care and hospitals.
9. Write your local elected officials about what is happening to newborn babies in hospitals and ask for the legal protection of newborn babies from underfeeding and of female parent'south rights to honest informed consent on the risks of insufficient feeding of breastfed babies.
10. Send us your stories.Share with u.s.a. your successes, your struggles and everything in between. Every story saves another kid from experiencing the same and teaches another mom how to safely feed her baby. Every phonation contributes to change.
11. Send united states messages of support.We work every unmarried day to make baby feeding prophylactic and supportive ofevery female parent and child.  Your letters of support keep usa all going.
12. Store atAmazon Grinand Amazon donates to Fed Is Best Foundation.

Or merely send us a message to find out how you can aid make a difference with new ideas!

Donate to Fed is Best

For any urgent letters or questions about infant feeding, please do not leave a bulletin on this page equally it will not get to united states of america immediately. Instead, please e-mail christie@fedisbest.org.

Thank you and we look forward to hearing from y'all!

Click here to join us!

Click on the infographic beneath to impress for your reference.

Parents tell us they were non taught how to supplement their babies safely, if necessary to prevent exclusive breastfeeding complications.

For more information on how to protect your baby from feeding complications due to early on exclusive breastfeeding, please read and download the Fed is All-time Feeding Plan, a way to communicate your feeding choices to your health care providers.

In add-on, please read and download the Fed is Best Weighing Protocol to prevent newborn aridity and failure to thrive.

Lastly, for more detailed information, please watch our educational videos onPreventing Feeding Complications.

Our total list of parent resources tin can be establish on our Resources Page.

If you wish to help parents learn how to protect their newborns from adventitious starvation, please share this story and sign our petition to demand that the CDC, the AAP, the U.S. Surgeon Full general and the WHO/UNICEF Babe-Friendly Hospital Initiative warn parents nearly the dangers of newborn and infant starvation from insufficient exclusive breastfeeding. Go to https://fedisbest.org/sign-our-petition/.

Delight consider making a donation to the Fed is Best Foundation to support its mission of providing safe babe feeding education and support and enhance awareness on the harms of insufficient infant feeding.

We believe all babies deserve to exist protected from hunger and thirst every unmarried day of their life and we believe that education on Safe Infant Feeding should exist free. If you lot would like to make a donation to back up the Fed is Best Foundation's mission to teach every parent Safety Infant Feeding, please consider making a one-time or recurring donation to our organization.

Donate to Fed is Best

Thank you lot and then much from the Founders of the Fed is All-time Foundation!

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Source: https://fedisbest.org/2017/02/given-just-one-bottle-still-alive/

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